Order of the SWNs Foundation

Flight of the Swan

A patient advocacy adventure through the medical wilderness

The average schwannomatosis patient waits 9.8 years for a correct diagnosis — if they are ever found at all.

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SWN patients are rare, scattered, and systematically missed. We find them.

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Expert care requires travel most patients cannot afford. We fund the path.

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Putting "NF Clinic" on your door must mean something. We hold clinics accountable.

Every trap in this game is drawn from documented clinical patterns.
If you recognize this journey, you are not alone.